Busy busy busy!!! It's been an interesting start to the school year. I'm living in a little teacup storm over Tom's schooling, but can't really talk about anything much just yet. Kesi has started her psychotherapy but the nature of the process means I don't know much yet!!
I spent today at the House of Lords as a guest of the Costello conference. Met some fantastic doctors who work in Noonan research and care, including a French doctor whose speciality is JMML - I'll be keeping in touch with her!
I also met a fellow Noonie mum, Gemma and her sweetie of a little boy. Made some good contacts for our embryonic charity Noonan UK, and left with the spoken promise of patronage and funding! All in all a good day's work, I say!
As for the rest... tired!!!
I spent today at the House of Lords as a guest of the Costello conference. Met some fantastic doctors who work in Noonan research and care, including a French doctor whose speciality is JMML - I'll be keeping in touch with her!
I also met a fellow Noonie mum, Gemma and her sweetie of a little boy. Made some good contacts for our embryonic charity Noonan UK, and left with the spoken promise of patronage and funding! All in all a good day's work, I say!
As for the rest... tired!!!
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