This is quick because in the midst of some lovely and hopeful news, I am reeling from massive miscommunication (once again) with our local CAMHS.
But to Tom... Feedback was great!!! The team at GOSH were really pleased with him, and felt that we have worked really hard with him. The only reservations they had before embarking on an intensive tube weaning programme was the realisation that our family life is stressful and unpredictable. Given that the programme will be stressful, they wanted to be sure we were ready.
Tom should be starting in the spring, and the programme is in the form of fortnightly clinic visits with a therapist. There are many professionals involved, but essentially we will be reducing his tube food gradually whilst working on his oral eating.
I will keep you posted on start dates, but I feel hopeful and positive!
But to Tom... Feedback was great!!! The team at GOSH were really pleased with him, and felt that we have worked really hard with him. The only reservations they had before embarking on an intensive tube weaning programme was the realisation that our family life is stressful and unpredictable. Given that the programme will be stressful, they wanted to be sure we were ready.
Tom should be starting in the spring, and the programme is in the form of fortnightly clinic visits with a therapist. There are many professionals involved, but essentially we will be reducing his tube food gradually whilst working on his oral eating.
I will keep you posted on start dates, but I feel hopeful and positive!
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